Two new websites have been launched featuring a collection of real life health stories and personal experiences of illness and health.
The two sites, Healthtalkonline, and Youthhealthtalk, have replaced DIPEx, a site created by Dr Ann McPherson, an Oxford GP, and Dr Andrew Herxheimer, former editor of the Drug and Therapeutics Bulletin.
The charity says the new sites include the UK’s largest collection of real life health stories and aim to support individuals who feel isolated as a result of a particular conditions featuring patients talking on videos and on audio clips as well as through transcripts.
The e-health 2.0 style sites use web 2.0 social media approaches to enable users to learn of other people's experiences of health and illness Topics covered include cancer, heart disease, chronic pain, bereavement, diabetes, epilepsy and women’s health.
Broadcaster Jon Snow and author Philip Pullman were among those who took part in the launch. Jon Snow, patron of the charity, said listening to the experiences of others could help people to better understand and cope with their illnesses.
“Healthtalkonline provides a medically endorsed forum for this kind of support,” he added.
All content on the site is based on research carried out by academics from Oxford University from interviews with almost 200 people. The charity says the sites are designed to be a useful resource for clinicians who want to better understand people’s perspectives as well as patients.
The dedicated site for young people, Youthhealthtalk, has been promoted by the singer Thom Yorke of the band Radiohead. It includes sections on epilepsy, sexual health and teenage cancer.
The charity said the new sites include greatly improved accessibility, enhanced navigation and comprehensive search facilities. DIPEx is funded by the Department of Health and charitable trusts.
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that should be 2,000 not 200!Unknown 304 weeks ago
The Health Talk Online website actually includes well over 10,000 video, audio & written extracts from more than 2,000 interviews as well as analysis of numerous issues affecting people with the conditions covered so far. The site has all the material that was in the DIPEx collections plus new sections on autism and Parkinson's disease. The re-design, based on feedback from site users, was to make it easier to navigate - the original site was probably a bit ahead of its time with all that streaming video back in 2001......
Patient.co.uk appears to have more...Unknown 304 weeks ago
It is interesting & very possitive to see more and more people adopting Health 2.0, but I'm surprised this site feel able to say they have "the UK’s largest collection of real life health stories".
Even a very brief browse of patient.co.uk reveals a dramatically larger range of Patient Experience "real life stories"...
Definately worth a read from my in my opinion :)
Similar website but only focusing on the causes of childhood cancersmkogel 304 weeks ago
There is another website recently launched by the CCE Research Alliance, an independant charity, which is very similar to those mentioned above. It is called Monty's Corner, http://www.montyscorner.org, only focusing on the causes of childhood cancers.